Project Information
MCS is currently conducting a needs assessment about palliative end-of-life (PEOLC)and dementia care services within Alberta's ethnically diverse, minority and vulnerable communities.
MCS is identifying community assets already in place, including the resources available in Edmonton or Calgary for those receiving PEOLC/hospice/dementia care.
We are speaking with caregivers, organizations and current/past recipients of services or their family members to understand their challenges and identify opportunities where we can do better.
MCS is still recruiting participants - if you are interested, contact us at: sylvia@moderncaregiving.ca or 587-710-6228.
Are you located in Edmonton or Calgary, and:
- Currently or have prior experience caring for an ethnically-diverse person with dementia or who is in need of end-of-life care; and or
- Currently or have prior experience as part of an organization that provides ethnically-diverse individuals with dementia or who is in need of end-of-life care.
If this sounds like you, we are interested in a short interview (25 –40 minutes) to learn more about your experiences and perspective.
A final report outlining the results of this engagement will be shared in 2023.
Definitions
Palliative and end-of-life care:
- Special medical care that is for anyone with a serious chronic disease or life-limiting illness.
- Does not mean imminent death.
- Not only inclusive of people who have cancer, and can happen at any point of the trajectory of a life limiting illness for any age, adults, or children diagnosed with a serious illness that will shorten their life.
- Focuses on a patient’s comfort, no matter what health problems a disease may cause.
Dementia:
- A loss of mental skills that affects a person’s daily life. Usually gets worse over time.
- May cause problems with memory and how well a person can think or plan.
- Usually caused by damage or changes in the brain (e.g. Alzheimer’s disease, strokes, tumours or head injuries, Parkinson’s disease).
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